Yoshie Imai, MIYAMOTO Yoko, YOSHIDA Yukiko, Yuta Inoue, IMAI Hironori, YAMADA Kazuyo, Tomoka Sakamoto and Hiroyuki Morino : ASCERTAINING THE VIEWS OF HEREDITARY CANCER SYNDROME PATIENTS RECEIVING GENETIC COUNSELING AND THEIR FAMILIES REGARDING GENETIC TESTING, Journal of Comprehensive Nursing Research and Care, 10, 2, 219, 2025.
<p>令和2年4月から遺伝性乳がん卵巣がん症候群(Hereditary Breast and Ovarian Cancer Syndrome:以降HBOC)の既発症者に対するリスク低減乳房切除術(Risk-Reducing Mastectomy:以降RRM)・乳房再建術ならびにリスク低減卵管卵巣摘出術(Risk-Reducing Salpingo-Oophorectomy:以降RRSO)が保険収載となった1)．特に，卵巣がんはサイレントキラーと呼ばれ，効果的なスクリーニングが施行できないため，予防的手術がリスク管理の最良の形態であると考えられる．経済的負担の軽減のみならず，がんの発症リスクへの精神的負担を軽減することが期待でき，益々の需要が見込まれる．本稿ではHBOCと診断された乳がん罹患患者のRRSOに焦点をあてて解説する．</p>
(キーワード)
意思決定 (decision making) / Regarding Risk-reducing Salpingo-oophorectomy / Hereditary Breast and Ovarian Cancer Syndrome
The purpose of this study was to clarify the current status of oncology certified nurse specialist(OCNS) involvement in cancer genome medicine. A survey of 235 OCNSs who consented to participate in the study revealed that those involved in cancer genome medicine had a better understanding of hereditary tumors. Through descriptive content analysis, 8 learning needs were identified in relation to cancer genome medicine. Among these needs,[ basic nowledge of hereditary tumors and cancer genome medicine], [regular acquisition of up-to-date information on genetic medicine], and[ genetic counseling in actual clinical settings] revealed no differences between OCNSs involved and not involved in genetic medicine. On the other hand,[ role of an OCNS in genetic medicine], [nursing care for patients and families with hereditary diseases], [systems and collaboration to incorporate genetic medicine into rganizations], [information on genetic medicine for facilities other than urban/designated hospitals], and[ programmed learning as a systematic approach to genetic medicine provided by academic societies] differed between the groups in terms of descriptive contents.
(キーワード)
Oncology Certified Nurse Specialist / Cancer Genome Medicine / involvement
Yoshie Imai, Yoshie Murakami, Yuko Takeda, Yuko Kawasaki, Megumi Kishino, Yuka Mori, Megumi Kageyama, Tomoka Sakamoto, Takae Bando and Kazuya Kondo : Process of parenting a child with retinoblastoma while guiding him or her toward disease acceptance, Shikoku Acta Medica, 79, 1.2, 91-102, 2023.
(要約)
<p>Background :</p><p>Retinoblastoma (RB) occurs at a very young age. Since the disease is diagnosed at an early age, the family is responsible for the care of the child s disease acceptance.</p><p>Objective : This study aims to explore the parenting process of children with RB toward disease acceptance.</p><p>Methods : Parents of eleven children with RB living in Japan were interviewed, and the data were analyzed using the Modified Grounded Theory Approach of Kinoshita (M-GTA).</p><p>Results : There were twenty-one concepts representing the process of parenting a child with RB while guiding him or her toward disease acceptance, and nineteen of them were classified into</p><p>ten categories based on semantic similarities. The two other concepts showed similar interpretability to categories. These categories and concepts were summarized into two core categories :</p><p>``Helping the child develop a positive mindset to define the disease as a part of him/herself'' and</p><p>``Paving the way in advance for the child to live comfortably when his or her living space expands''.</p><p>Conclusions : In a cyclical framework of parenting, consisting of two core categories described</p><p>in Results, the parents coordinated these two approaches while maintaining balance by ``Avoiding saying anything that does not need to be said'' and established their process of parenting a child</p><p>with RB while guiding him or her toward disease acceptance, according to their household situation. The results suggest the necessity of recognizing that in childhood-onset cancers, such as RB,</p><p>and diseases involving genetic issues, problems tend to occur not only during the treatment period but also at the time of life events and providing support from a comprehensive perspective.</p>
The purpose of this study was to characterize periods of hospital-to-home care transition for elderly cancer patients by extracting definitions of such periods and their characteristics as situations from the literature, and to discuss effective nursing support toward hospital-to-home care transition. Relevant research papers published within the period between 2010 and 2020 were searched for using Ichushi Web and PubMed. Descriptions related to periods of transition, characteristics of situations, and hindering/promoting factors were extracted without any changes and categorized based on descriptive content similarities. In these papers, a period of hospital-to-home care transition was described as 1 week to 1 year after discharge. As a situation, it was characterized as ``a time when the patient rebuilds his/her life'', and therefore, ``a time of instability''. Factors hindering and promoting hospital-to-home care transition were represented by6categories, which suggested the following commonalities between them : [ physical management],[patients'/families' intentions],[home care systems],[other family members' commitments to home care], [collaboration systems], and[nurses' home care experience].
(キーワード)
Elderly Cancer Patients / Hospital-to-home Care Transition / Literature Review